Prince Frederik of Luxembourg Passes Away at 22 Due to Rare Genetic Disease
It's a heartbreaking moment for Luxembourg and the world as we mourn the loss of Prince Frederik, who passed away at just 22 years old. His parents, Prince Robert and Princess Julie, confirmed the tragic news, sharing that their beloved son succumbed to PolG, a rare mitochondrial disease that severely affects the body's ability to generate energy. This devastating illness leads to organ failure and impacts the brain, nerves, liver, muscles, and more.
Frederik’s journey with PolG was marked by immense strength and courage. He was born with the disease but wasn’t diagnosed until he was 14, when symptoms became more evident. Despite facing numerous physical and mental challenges, Frederik's resilience and zest for life never wavered. His family describes him as someone who faced every hurdle with grace, humor, and determination.
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In a heartfelt statement shared on the PolG Foundation’s website, his parents expressed admiration for their son’s unwavering spirit. They described how he battled the condition with a relentless will to live, inspiring everyone around him. Frederik was not just a fighter; he was a visionary who wanted to make a difference. He founded the PolG Foundation, dedicated to advancing research and spreading awareness about this rare disorder. The foundation has already funded major projects totaling over $3.6 million, significantly contributing to scientific progress in the field.
Frederik’s mother, Princess Julie, has been a tireless advocate for PolG research, dedicating the past 15 years to raising awareness and pushing for scientific breakthroughs. She has organized global conferences and worked closely with researchers to drive collaboration and funding efforts.
One particularly touching moment captured Frederik’s unique perspective on life. During a hospital stay, he asked his brother Alexander to take a photograph of the sunset through a tiny window. He saw beauty even in the most challenging circumstances. After his passing, his family discovered notes on his phone—simple yet profound reminders like, “Go outside when the sun is shining.”
His passing is a monumental loss, not only to his family but to all who were touched by his story. He is survived by his parents, his brother Alexander, and his sister Charlotte. While the world grieves, his legacy continues through the work of the PolG Foundation, ensuring that his fight against this cruel disease was not in vain.
Rest in peace, Prince Frederik. Your light will continue to shine in the lives of those you’ve touched.
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